Searchable abstracts of presentations at key conferences on calcified tissues

ba0002p29 | (1) | ICCBH2013

Coping with osteogenesis imperfecta; what kind of difficulties are families living with?

Arabaci Leyla Baysan , Bozkurt Sati , Vara Senay , Ozen Samim , Goksen Damla , Darcan Sukran

Aim: Osteogenesis imperfecta (OI) the most common genetic disorder of bone is characterized by frequent, unpredictable fractures of long bones with progressive skeletal deformity. Although patients with OI are severely affected physically, this disorder may have a profound influence on patients and their families. This report reviews the extent of this influence, which includes the emotional burdens, the social costs of immobilization and repeated hospitalization.<p class=...